Having trouble accessing ERT

If you are a MPS-II sufferer that cannot get access to ERT or have been removed from the LSDP it is worthwhile speaking to your doctor or contacting the Society.

Also please feel free to contact us (Michelle & Rob) as we are happy to assist where we can.

We have continued to lobby for change and there have been some positive steps taken by the LSDP since Christian was reinstated.

The guidelines are still in place but you have a greater chance at successful if you are persistent.