A link about Intrathecal clinical trials ongoing in the United States
21/07/2013 14:03
Racing the clock against Hunter Syndrome a rare & deadly condition. Our hope is finding a cure and in the interm to access treatments
This website exists to provide information and raise awareness about Hunter Syndrome. To advocate and pioneer access to Life Saving Treatments The fight forChristian! With God all things are possible! (Matt.16:26)