About Us

Proud mom of Christian Dierkx

02/08/2013 23:44
22.07.2013 00:56 I am a proud and caring mom to two boys. My husband and I work to together to be advocates for our son Christian and other families with MPS-II. Commenced Elaprase When Christian was two years old (mid 2009) we approached his metabolic doctor and together we applied...

Michelle & Rob Dierkx

02/08/2013 22:20
Michelle and Robert Dierkx are parents to Christian Dierkx who was diagnosed with hunter syndrome shortly after birth in June, 2007. Christian is the first born for Michelle and Robert. Their story became public in February 2013 after a long and sustained campaign to have their son’s Christian...