I am a proud and caring mom to two boys. My husband and I work to together to be advocates for our son Christian and other families with MPS-II.
When Christian was two years old (mid 2009) we approached his metabolic doctor and together we applied...
Michelle and Robert Dierkx are parents to Christian Dierkx who was diagnosed with hunter syndrome shortly after birth in June, 2007. Christian is the first born for Michelle and Robert.
Their story became public in February 2013 after a long and sustained campaign to have their son’s Christian...
This website exists to provide information and raise awareness about Hunter Syndrome. To advocate and pioneer access to Life Saving Treatments The fight forChristian! With God all things are possible! (Matt.16:26)